Palliative care provided by family and community doctors in primary health care in Brazil

A national survey

Authors

  • Caroline Wassmansdorf Mattos ESCOLA DE SAÚDE PÚBLICA DE FLORIANÓPOLIS (ESP) - Florianópolis - Santa Catarina - Brasil https://orcid.org/0000-0001-9145-9607
  • Rodrigo D'Agostini Derech PREFEITURA MUNICIPAL DE FLORIANÓPOLIS (PMF) - Florianópolis - Santa Catarina - Brasil https://orcid.org/0000-0002-0692-3282

DOI:

https://doi.org/10.5712/rbmfc15(42)2094

Keywords:

Palliative Care, Primary Health Care, Family Practice

Abstract

Background: The need for palliative care has increased whitin the scope of primary health care (PHC) in Brazil. Objective: To characterize the practice of palliative care provided by family and community doctors in primary health care in Brazil. Methods: Cross-sectional and descriptive study. Family and community doctors of PHC in Brazil answered a self-administered questionnaire, with questions involving the eight domains of the guidelines of National Consensus Project for Quality Palliative Care. Results: 87 responses from family doctors from 34 Brazilian cities were analyzed. Most respondents (92%) did not have a palliative care discipline at graduation. There is little use of validated tools for the analysis of patients’ pain and functionality. There is little availability of multidisciplinary team trained in PHC. There is a deficit in communication between physicians, patients and family members. There is low availability of medications for symptomatic control of pain and dyspnea in palliative patients in primary care. Conclusion: There is some provision of palliative care in primary health care, but with insufficiency. Difficulties in medical training, poor availability of supplies and human material may hinder a better offer of primary palliative care in Brazil. 

Downloads

Download data is not yet available.

Metrics

Metrics Loading ...

Author Biographies

Caroline Wassmansdorf Mattos, ESCOLA DE SAÚDE PÚBLICA DE FLORIANÓPOLIS (ESP) - Florianópolis - Santa Catarina - Brasil

Possui graduação em MEDICINA pela Universidade Federal do Paraná (2016). Residência Médica em Medicina de Família e Comunidade pela Prefeitura Municipal de Florianópolis (2019).

Rodrigo D'Agostini Derech, PREFEITURA MUNICIPAL DE FLORIANÓPOLIS (PMF) - Florianópolis - Santa Catarina - Brasil

Possui graduação em MEDICINA pela Universidade Federal de Santa Catarina (2001). Residência Médica em Medicina Interna pelo Hospital Nossa Senhora da Conceição em Porto Alegre e em Geriatria pelo Instituto de Geriatria e Gerontologia da PUCRS. Atualmente é médico plantonista do Centro de Pesquisas Oncolóicas e médico geriatra da PREFEITURA MUNICIPAL DE FLORIANÓPOLIS. Tem experiência na área de Medicina, com ênfase em Geriatria. É membro da Comissão de Farmácia e Terapêutica da Prefeitura Municipal de Florianópolis

References

Connor S, Sepulveda C. Global Atlas of Palliative Care at the End-of-Life. 2014. Disponível em: <http://www.thewpca.org/resources/global-atlas-of-palliative-care/> Acesso em: 27 dez. 2017.

Starfield B. Atenção primária: equilíbrio entre necessidades de saúde, serviços e tecnologia. UNESCO. Brasília, 2002.

Pastrana T, Torres-Vigil I, de Lima L. Palliative care development in Latin America: An analysis using macro indicators. Palliat Med. 2014; 28(10):1231–8. doi: 10.1177/0269216314538893. DOI: https://doi.org/10.1177/0269216314538893

Hermes HR, Lamarca ICA. Cuidados paliativos: uma abordagem a partir das categorias profissionais de saúde. Cien Saude Colet. 2013; 18(9):2577-88. DOI: https://doi.org/10.1590/S1413-81232013000900012

Comissão Intergestores Tripartite (BR). Resolução Nº 41, de 31 de outubro de 2018. Dispõe sobre as diretrizes para a organização dos cuidados paliativos, à luz dos cuidados continuados integrados, no âmbito Sistema Único de Saúde (SUS). Diário Oficial da União, Brasília, DF, 2018

Marcucci FCI, Cabrera MA, Perilla AB, Brun MM, de Barros EM, et al. Identification and characteristics of patients with palliative care needs in Brazilian primary care. BMC Palliat Care. 2016; 15:51. doi: 10.1186/s12904-016-0125-4 DOI: https://doi.org/10.1186/s12904-016-0125-4

Floriani CA, Schramm FR. Moral and operational challenges for the inclusion of palliative care in primary health care. Cad Saúde Pública, Rio de Janeiro. 2007; 23(9):2072-80.

Paz CRP, Pessalacia JDR, Zoboli ELCP, Souza HL, Granja GF, et al. New demands for primary health care in Brazil: palliative care. Invest Educ Enferm. 2016; 34(1): 46-57. doi:10.17533/udea.iee.v34n1a06 DOI: https://doi.org/10.17533/udea.iee.v34n1a06

Shadd JD, Burge F, Stajduhar KI, Cohen SR, Kelley ML, et al. Defining and measuring a palliative approach in primary care. Can Fam Physician. 2013; 59(11):1149–50. PMCID: PMC3828085. PMID: 24235182

Ministério da Saúde (BR). Portaria nº 2.436, de 21 de setembro de 2017. Aprova a Política Nacional de Atenção Básica, estabelecendo a revisão de diretrizes para a organização da Atenção Básica, no âmbito do Sistema Único de Saúde (SUS). Diário Oficial da União, Brasília, DF, 2017.

Gusso G, Lopes JMC. Tratado de Medicina de Família e Comunidade: princípios, formação e prática. Vol 1. Porto Alegre: ARTMED, 2012. 846p.

Wong FK, Ng AY, Lee PH, Lam PT, Ng JS, et al. Effects of a transitional palliative care model on patients with end-stage heart failure: a randomised controlled trial. Heart. 2016; 102(14):1100–8. doi: 10.1136/heartjnl-2015-308638. DOI: https://doi.org/10.1136/heartjnl-2015-308638

Brännström M, Boman K. Effects of person-centred and integrated chronic heart failure and palliative home care. PREFER: a randomized controlled study. Eur J Heart Fail. 2014; 16(10):1142–51. doi: 10.1002/ejhf.151. DOI: https://doi.org/10.1002/ejhf.151

SBMFC. Currículo baseado em competências para Medicina de Família e Comunidade, Lermen Jr N. Rio de Janeiro, 2015. Disponível em <http://www.sbmfc.org.br/media/Curriculo%20Baseado%20em%20Competencias(1).pdf>. Acesso em: 27 dez. 2017.

De Roo ML, Leemans K, Claessen SJ, Cohen J, Pasman HR, et al. Quality indicators for palliative care: update of a systematic review. J Pain Symptom Manage. 2013; 46(4):556-72. doi: 10.1016/j.jpainsymman.2012.09.013 DOI: https://doi.org/10.1016/j.jpainsymman.2012.09.013

National Consensus Project for Quality Palliative Care. Clinical practice guidelines for quality palliative care, 4th edition. Richmond, VA: National Coalition for Hospice and Palliative Care. 2018. Disponível em:

Pastrana T, de Lima L, Wenk R, Eisenchlas J, Monti C, Rocafort J, Centeno C. Atlas de Cuidados Paliativos de Latinoamérica. Houston: IAHPC Press; 2012. Disponível em: <http://cuidadospaliativos.org/atlas-de-cp-de-latinoamerica/> Acesso em: 12 fev. 2018.

Mason B, Buckingham S, Finucane A, Hutchison P, Kendall M, McCutcheon H, et al. Improving primary palliative care in Scotland: lessons from a mixed methods study. BMC Fam Pract. 2015; 16:176. doi: 10.1186/s12875-015-0391-x. DOI: https://doi.org/10.1186/s12875-015-0391-x

Gadoud A, Kane E, Macleod U, Ansell P, Oliver S, et al. Palliative Care among heart failure patients in primary care: a comparison to cancer patients using english family practice data. PLoS ONE. 2014; 9(11):e113188. doi: 10.1371/journal.pone.0113188. DOI: https://doi.org/10.1371/journal.pone.0113188

Green E, Knight S, Gott M, Barclay S, White P. Patients’ and carers’ perspectives of palliative care in general practice: A systematic review with narrative synthesis. Palliat Med. 2018; 32(4), 838–50. doi: 10.1177/0269216317748862. DOI: https://doi.org/10.1177/0269216317748862

Ngwenya N, Kenten C, Jones L, Gibson F, Pearce S, et al. Experiences and preferences for end-of-Life care for young adults with cancer and their informal carers: A Narrative Synthesis. J Adolesc Young Adult Oncol. 2017; 6(2):200-12. doi: 10.1089/jayao.2016.0055. DOI: https://doi.org/10.1089/jayao.2016.0055

Morrison RS, Meier DE. High rates of advance care planning in New York city’s elderly population. Arch Intern Med. 2004; 164(22):2421-6. doi: 10.1001/archinte.164.22.2421. DOI: https://doi.org/10.1001/archinte.164.22.2421

Martoni AA, Varani S, Peghetti B, Roganti D, Volpicella E, et al. Spiritual well‐being of Italian advanced cancer patients in the home palliative care setting. Eur J Cancer Care. 2017; 26(4). doi: 10.1111/ecc.12677. DOI: https://doi.org/10.1111/ecc.12677

Schneider N, Mitchell GK, Murray SA. Palliative care in urgent need of recognition and development in general practice: the example of Germany. BMC Fam Pract. 2010; 11(66). doi: 10.1186/1471-2296-11-66. DOI: https://doi.org/10.1186/1471-2296-11-66

Luckett T, Phillips J, Agar M, Virdun C, Green A, et al. Elements of effective palliative care models: a rapid review. BMC Health Serv Res. 2014;14(136). doi: 10.1186/1472-6963-14-136. DOI: https://doi.org/10.1186/1472-6963-14-136

Alvarez MP, Agra Y. Systematic review of educational interventions in palliative care for primary care physicians. Palliat Med. 2006; 20(7):673-83. doi: 10.1177/0269216306071794. DOI: https://doi.org/10.1177/0269216306071794

Pelayo-Alvarez M, Perez-Hoyos S, Agra-Varela Y. Clinical effectiveness of online training in palliative care of primary care physicians. J Palliat Med. 2013; 16(10):1188-96. doi: 10.1089/jpm.2013.0005. DOI: https://doi.org/10.1089/jpm.2013.0005

Published

2020-03-23

How to Cite

1.
Wassmansdorf Mattos C, D’Agostini Derech R. Palliative care provided by family and community doctors in primary health care in Brazil: A national survey. Rev Bras Med Fam Comunidade [Internet]. 2020 Mar. 23 [cited 2024 Jul. 22];15(42):2094. Available from: https://rbmfc.org.br/rbmfc/article/view/2094

Issue

Section

Research Articles

Plaudit

Similar Articles

You may also start an advanced similarity search for this article.